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Internet Directory - Top : Health : Support Groups : Conditions and Diseases : Facial Differences

Top : Health : Support Groups : Conditions and Diseases : Facial Differences (62 web sites)
Apert Syndrome
Cleft Lip and Palate
Craniosynostosis
Langer-Giedion Syndrome  
Parry-Rombergs Syndrome  
Smith-Magenis Syndrome
Stickler's Syndrome  
Treacher Collins Syndrome
 Related Categories
Health: Conditions_and_Diseases: Congenital_Anomalies: Craniofacial_Anomalies
 Related Web Pages

AboutFace
International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
http://www.aboutfaceinternational.org/

Acne Support Group in Cyberspace
Support group and forum for anyone with acne to visit, discuss, share treatments, provide support and move through the stressful event of having acne.
http://asgic.proboards.com/

Birthmark Support Group
UK-based charitable organization provides information about birthmarks, how to get help, treatment centres, newsletters, diary of events and links to other associated support groups.
http://www.birthmarksupportgroup.org.uk/

Changing Faces
UK charity that supports, represents and campaigns for people who have disfigurements of the face or body.
http://www.changingfaces.org.uk/

Foundation for Faces of Children
Expert information for families and health care professionals about craniofacial conditions.
http://www.facesofchildren.org/

Goldenhar Family Support Group
Aims to support families throughout the UK who face the day to day challenges of supporting relatives with Goldenhar Syndrome and related problems.
http://www.goldenhar.org.uk/

Headlines
Craniofacial support group in the UK for conditions associated with craniosynostosis. Includes details of the newsletter, events, fundraising and resources.
http://www.headlines.org.uk/

Johns Hopkins Center for Craniofacial Development and Disorders
Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details of activities at the Center.
http://www.hopkinsmedicine.org/craniofacial/

Moebius Syndrome Foundation
Non-profit organisation that aims to provide information and support to individuals with Moebius syndrome and their families. Includes resources, news and articles and information on support groups, events and research.
http://www.moebiussyndrome.com/

Sincere Meditations
Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
http://www.davidroche.com/lamott.htm

Support Works Online
Resources to find or form support groups related to facial difference. Information on medical research.
http://www.supportworks.org/cat806.htm

TRPS Support Group UK
Provides information and support to those with trichorhinophalangeal syndrome and their families. Includes information on the condition, patients’ stories and a forum.
http://trpsuk.org/

The AmeriFace Circle of Smiles
Webring community for families whose lives have been touched by cleft lip and palate and other craniofacial anomalies.
http://www.webring.com/t/The-AmeriFace-Circle-of-Smiles

The Craniofacial Society of Great Britain and Ireland
Information about the society, which is a multidisciplinary forum for specialists.
http://www.craniofacialsociety.org.uk/

The Facial Pain Association
Aims to serve as an advocate for patients living with trigeminal neuralgia and related facial pain conditions by providing information, encouraging research and offering support.
http://www.fpa-support.org/

The Personal Side of Craniofacial Differences
Personal accounts of living with craniofacial conditions, and related webrings.
http://members.tripod.com/~Craniofacial/index.html

Yayasan Senyum: The Smile Foundation
Non-profit organization supporting the delivery of health care to people with craniofacial disabilities, in particular children with cleft lip and palate in Bali, Lombok, Java and other areas of Indonesia.
http://www.senyumbali.org/