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Internet Directory - Top : Health : Conditions and Diseases : Nutritional and Metabolic Disorders : Inherited : Sanfilippo Syndrome

Top : Health : Conditions and Diseases : Nutritional and Metabolic Disorders : Inherited : Sanfilippo Syndrome (8 web sites)
 Related Categories
Health: Conditions_and_Diseases: Musculoskeletal_Disorders: Connective_Tissue
Genetic_Disorders_Top: Health: Conditions_and_Diseases: Genetic_Disorders
Health: Conditions_and_Diseases: Rare_Disorders
 Related Web Pages

Ben's Dream
Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
http://www.bensdream.org/

Children's Medical Research Foundation
Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
http://www.curekirby.org/

Frankiepants
Personal site about a child with this disorder. Provides details about the condition.
http://www.frankiepants.com/

Jonah's Just Begun
The parents of Jonah Weishaar, who has the rare genetic disease Sanfilippo Syndrome, are setting up the Foundation to Cure Sanfilippo to undertake research into the condition.
http://www.jonahsjustbegun.org/

The Sanfilippo Children's Research Foundation
Canadian based charitable group founded by the parents of Elisa Linton.
http://www.alifeforelisa.org/