Internet Directory - Top : Health : Conditions and Diseases : Nutritional and Metabolic Disorders : Cholesterol and Other Fats : Refsum s
Patient: Refsum’s Disease
Factsheet on this disorder of fatty acid oxidation, its description, pathogenesis, presentation, other features, differential diagnosis, investigations, management, complications and prognosis.
Information sheet on this disease as to what it is, the symptoms, treatment and research being done.
Yahoo! Group - Refsum Disease Support Network
E-mail based discussion group for people with this disorder and their families for sharing experiences, coping strategies and dietary tips.
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