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Internet Directory - Top : Health : Conditions and Diseases : Nutritional and Metabolic Disorders : Cholesterol and Other Fats : Niemann Pick

Top : Health : Conditions and Diseases : Nutritional and Metabolic Disorders : Cholesterol and Other Fats : Niemann-Pick (12 web sites)
 Related Categories
Health: Conditions_and_Diseases: Genetic_Disorders
Health: Conditions_and_Diseases: Neurological_Disorders: Brain_Diseases: Metabolic
 Related Web Pages

Ara Parseghian Medical Research Foundation
About this foundation whose goal is to find a cure for the devastating Niemann-Pick Type C disease.
http://www.parseghian.org/

GeneReviews: Niemann-Pick Disease Type C
Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
http://www.ncbi.nlm.nih.gov/books/NBK1296/

International Center for Types A and B Niemann-Pick Disease
Provides information on the prevention and treatment of this disorder for patients, physicians and scientists.
http://www.mssm.edu/niemann-pick/

International Niemann-Pick Disease Alliance
An alliance of non-profit support organisations who are associated with the rare group of genetic diseases known collectively as Niemann-Pick Disease.
http://www.inpda.org/

Jacob's Reach
Niemann-Pick Disease Type C public awareness campaign in honor of Jacob Quinn DeMeis. Includes information on the disease and on Jacob's short life.
http://www.jacob-quinn.com/

National Niemann-Pick Disease Foundation
Provides in depth education and support for patients and families. Also information about the foundation itself.
http://www.nnpdf.org/

Niemann Pick Patients
UK charitable organisation offering support and information to families affected by Niemann-Pick diseases and to associated health and social care professionals.
http://www.niemann-pick.org.uk/

Niemann-Pick Disease
Information sheet on this disease including what it is, treatment, prognosis and research being done.
http://www.ninds.nih.gov/disorders/niemann/niemann.htm

Think Again Think NP-C campaign
Aiming to reduce the time to diagnosis by supporting healthcare professionals who are unfamiliar with NP-C to recognise the key signs and symptoms of the disease.
http://www.think-npc.com/

“Our bid to raise awareness of our son’s disease”
The BBC reports on a campaign to raise doctor’s awareness of Niemann-Pick type C.
http://www.bbc.co.uk/news/health-31644877