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Internet Directory - Top : Health : Conditions and Diseases : Musculoskeletal Disorders : Connective Tissue : Marfan Syndrome

Top : Health : Conditions and Diseases : Musculoskeletal Disorders : Connective Tissue : Marfan Syndrome (20 web sites)
 Related Categories
Health: Conditions_and_Diseases: Musculoskeletal_Disorders: Connective_Tissue: Ehlers_Danlos_Syndrome
Health: Conditions_and_Diseases: Musculoskeletal_Disorders: Connective_Tissue: Hypermobility_Syndrome
 Related Web Pages

Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
http://www.marfan.ca/

GeneReviews: Marfan Syndrome
Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
http://www.ncbi.nlm.nih.gov/books/NBK1335/

International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.
http://www.marfanworld.org/

Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
http://jrmarfan58.com/

MFS Type 1 Fibrillin Gene
Major resources listed as well as genetic information.
http://omim.org/entry/154700

Marfan Syndrome
A guide to this connective tissue disease.
http://www.ygyh.org/marfan/whatisit.htm

Marfan Syndrome
Article from eMedicine.
http://emedicine.medscape.com/article/946315-overview

Marfan Syndrome
A Question-Answer format page of information.
http://www.medicinenet.com/marfan_syndrome/article.htm

Marfan Syndrome: Does Diet Play a Role
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
http://www.ctds.info/marfan.html

Marfans Research Foundation
Irish charity with information on fund raising activities and the condition.
http://www.marfansresearchfoundation.ie/

NHS Choices: Marfan Syndrome
Provides information on this inherited condition that affects the body's connective tissues. Includes details of symptoms, causes, diagnosis and treatment.
http://www.nhs.uk/conditions/Marfan-syndrome/

National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physicians.
http://www.marfan.org/

Questions and Answers about Marfan Syndrome
From the National Institutes of Health.
http://www.niams.nih.gov/Health_Info/Marfan_Syndrome/default.asp

Slovak Marfan Association
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
http://marfan.szm.sk/

South African Marfan Syndrome Organisation
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
http://www.marfan.org.za/

The Marfan Syndrome
A diary of the disease events in the life of someone with this condition. Includes a list of links.
http://www.angelfire.com/ms2/CysticFibrosisMarfan/standingtall.html

The Mystery of Akhenaten: Genetics or Aesthetics?
A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
http://www.heptune.com/Marfans.html

The engineer who fixed his own heart and others too
The BBC reports on Tal Golesworthy, who didn’t like the available treatments for Marfan, so did better.
http://www.bbc.co.uk/news/health-24524027