Sotos Syndrome Support Association 
Online community for education of professionals and families and to exchange ideas, gather research, and help one another cope. Quarterly newsletters, reference library, annual meetings, and conferences are available to members and professionals.
http://www.well.com/user/sssa/Soto's Syndrome
Also known as cerebral gigantism, an information sheet compiled by NINDS.
http://www.ninds.nih.gov/health_and_medical/disorders/sotos.htm
MCW Healthlink
An article about soto's syndrome with an explanation of what it is, the features, symptoms and the prognosis.
http://healthlink.mcw.edu/article/921961934.html
About com Guide Laura L. Jelliffe, Ph.D.
Symptoms, diagnosis, and treatment of Soto's syndrome. Information on research, community outreach and support.
http://genetics.about.com/science/genetics/library/blsoto.htm
Sotos Syndrome Support Association of Canada
Provides educational and emotional support, and current information. English and French.
http://www.sssac.com
